This marks 6 Months since my Achalasia surgery the Heller Myotomy. This surgery allowed me to eat and drink again after years of malabsorption problems, pain and finally my esophagus dying and closing off. I had finally lived off a PEG Feeding Tube hidden away for a year prior to the surgery. Many thought I had an ED, many thought I caused my problem, I now understand the harsh judgments those with ED must endure. I was told I was too thin too many times to count but I never responded because first off, I didn’t care to, and secondly, it was too hard to try to explain my disease and the struggle. It took years to diagnose because it is rare. I had many misdiagnoses via “I think you have....” But it took one specialist, trained in disease of the esophagus and a pioneer in the treatment of these diseases to see me, discover it, and finally perform the surgery that would give me my life back. See this wasn’t a simple case of acid reflux and I’ve NEVER had acid reflux! Wrong wrong wrong. Achalasia and scleroderma are progressive disease, meaning I will need future “tweaks” to my GI system but I have to say it’s WONDERFUL knowing what caused this and knowing there’s treatments and more importantly there’s an entire population fighting this with me. They gave me the support and the community to find hope. 💜 the sky is the limit! #achalasia #scleroderma #achalasiasurvivor
