Tag Archives: hope

How Photography Helps Me

Bald Eagle
My friend the eagle

I’m not a professional photographer.  I’m a person, with a camera who happens to love taking photos of the things in my life that bring me joy or things I want to have to look at in the future.  Being ill with chronic illnesses is a full-time job. Swirling around me are doctor appointments, managing the phone calls reminding me of doctor appointments, invasive tests, pain, questions, medical bills, hospital visits, anger, wrong diagnosis, right diagnosis, trips to the pharmacy, insurance problems, explaining… lots and lots of explaining. This is along with living life as a wife, mother and grandparent trying to act like I’m just fine because everyone has an opinion, if you just keep your struggles or problems to yourself then you don’t have to listen to the well meaning loved ones constant suggestions or, sometimes their anger at you.  I don’t blame them, I understand that they love me, maybe they’re scared but trying to not act it, their life is affected too.  I know when they’re using my illness as a way to not take responsibility for bad or rude behavior or saying hurtful things as well.  I don’t care if I’m sick or 100% healthy, I have learned that if someone sees your weakness, and they know you don’t have the energy to fight, they will do and say things they’d probably never do or say if I wasn’t just too sick to take action. So, I take responsibility and suggest counseling for us.  But back to photography.

Bald Eagles
Working together

All that comes with being ill with “diagnosed conditions” which is somehow a must have for the majority of people to treat you with respect and honor your less than perfect ability to meet everyone’s needs, I found I needed something to quiet my mind and release this anger.  I’m not an angry person, I thought, but I sure have a lot stored up.  However, by getting my camera and disappearing to my favorite places to take a photo or two or 500 I regain a calm that allows me to forget the pain and all that I must handle and instead, enjoy my life. The only person I should look to, to save me or to help me is ME.  My attitude towards all I deal with is going to either make me an angry sick person with a pessimistic outlook on everything which I never liked being around, or is going to help me see that I’m not totally gone, useless, broken, hopeless and numb.  Rarely am I well enough lately to take these photo opportunities.  But, if ever I get the chance, I fight to do it because it reminds me of all the beauty around me. Continue reading How Photography Helps Me

REMEMBERING My Family SAVED Me 💙

Source: My Family SAVED Me 💙

This is a post I wrote in 2015. About my sister and brother in law. I lost them both, my sister in January and my brother in law the year before. I never dreamed they’d be gone so soon. I never dreamed I would lose them. Family is forever though

Meaning in my Mornings (my mornings are mean)

I said earlier, struggles will come and go, it’s life and this particular struggle has entered my mornings in the past year. It has taken me almost a year to search for meaning in it, because I have to always figure out what the heck?! Why this?’ if I’m the only person who feels this in the mornings, is there a fix? So, I finally Googled “morning depression” because that’s it in a nutshell. I’m awakened every morning in a horrible depression. Usually I’m sweating, in pain, almost paralyzed from even turning over much less putting my feet on the floor and trying to wake myself up from this horrible experience.

Once awake, and when I’ve managed to sit up for awhile, about an hour, the whole event, the depression, sweat, pain fades. On its own, without even a sip of water, it fades. Every single morning.

I’ve prayed before falling asleep that my morning will be normal, my old normal, where it just takes me a bit to wake up, my joints are sore but I’m used to it. I would always greet morning with anticipation of what the day will bring, what needs to be done today, etc.

But, this morning depression has pushed its way to the number one issue I dread, edging out the Achalasia pain when you can’t swallow and everything Lupus. Beating myself up has become a daily exercise.

However, I’ve felt, in my heart, that I need to find reasons followed by SOLUTIONS for this morning depression. Not the old me, where I’d find possible reasons and continue on searching all the bad, sad, negative stories, thus bringing me down even more and pushing that hope I’ve always had so far back in my mind that I felt no hope. I would just feel that this was yet another rotten symptom of my illnesses that I had to learn to live with.

That’s the difference here, an uncomfortable symptom appears, throw my hands up and say, “why me?! Really?! What more can happen?” Never say that, because something more can happen and you’ve (me, this isn’t a “how to handle things” blog, it’s me writing for myself. Getting it out, to revisit when dark days roll through) set yourself up for continually feeling as if you’re being punished. I’m not being punished, I happen to have Achalasia, systemic Lupus, and with these illnesses come symptoms, and with these symptoms come the challenge to identify ways, if not a cure, but at least to learn why and how to make them easier to deal with. Knowledge is power, with this power comes hope.

So, back to this morning depression thing. Since I’ve learned to research with a positive mindset instead of searching to find reasons to feel hopeless, I’ve been figuring out what may be happening and attempting to write things down to compare what might be leading to this. I’ve found an entire group of people who deal with this and the reasons, the research being done, how my current illnesses may be leading to it and how to try and change my nutrition or medications to see if I can ease it.

Continue reading Meaning in my Mornings (my mornings are mean)